Burnham bikers buy vital monitor for six-year-old Finn
group of big-hearted Burnham-On-Sea motorbike enthusiasts has
raised hundreds of pounds for a crucial monitor which will give
a six year-old girl some independence.
'Bike Knights' group took part in a bike run at the weekend to
raise £642 for a special monitor which will allow Finn Goggin
to sleep in her own room for the first time in her life.
was born with Dravet syndrome, a rare form of intractable epilepsy,
and therefore needs 24-hour care because she is unable to breathe
when she experiences one of her daily seizures.
a seizure begins, Finns parents have just three minutes
to administer her medication - but the monitor, which acts as
an alarm when Finn has a seizure, will allow her to spend time
in another room alone.
of the organisers of the ride-out was Heather Hayward, who said:
"We were happy to raise money from our ride-out for Finn,
towards a monitor."
were 33 bikes and respective pillions that took part in Sunday's
event and, with donations, the total raised was £642, with
other anonymous donations as well as a table top sale. We teamed
up with Paul from Ridesafe for this much-needed monitor fundraiser,
which we have achieved. A big thank to all who participated in
Pictured: Top, the bikers who took part in the ride-out and, above,
Heather Hayward, owner Jeremy Barker and organiser Phil Hayward
handing over the summer bike award this week after a series of