fundraiser to walk 50 miles of Great Wall of China for charity
Burnham-On-Sea woman is planning to walk part of the Great Wall
of China next month to raise cash for the Cystic Fibrosis Trust.
September 10th Jenny Allen, pictured with her husband,
will be flying to Beijing to take part in the six day trek along
50 miles of the Great Wall.
told Burnham-On-Sea.com: "Our daughter Tilly Jefferies, 21,
suffers with the condition and has battled many lung infections
with prolonged hospital admissions. She is dependent on oxygen
and has a rigorous daily physio therapy and drug treatment."
niece Leanne Woodward also had Cystic Fibrosis but sadly lost
her battle and died in September 2013 aged just 22 years."
added: "Anyone who knows me would know that I am the least
energetic person you could meet, but I firmly believe any inconvenience
or hardship I may have during the China challenge is nothing when
compared to Tilly's daily struggle and all those who live with
continued: "There are improvements in the care and management
of the condition but as yet no known cure. The work of the Cystic
Fibrosis Trust is to bring a cure closer and to care for and support
sufferers and their families is paramount."
Fibrosis is the UK's most common genetically inherited life shortening
condition. It causes the body to produce a thick sticky mucous
which clogs up the lungs and digestive system. This leads to nutrition
deficiencies and serious lung infections and disease.
in three will die before the age of 40, and for most the only
hope of improving their quality of life is to have a lung transplant,
but sadly as so few people opt onto the organ donor list some
lose their fight before they get a call from the transplant team.