fundraisers aim to help Freddy, 4, get crucial heart surgery
Lions Club are organising a unique event on the town's seafront
today (Sunday, September 10th) to raise funds for a little boy's
vital heart surgery.
fundraisers at the club are holding a static sponsored cycle ride
on the seafront with the target of cycling from John O'Groats to
Land's End in a day.
event will be held Burnham's Esplanade from 9am onwards, raising
funds for 4-year-old Freddy Vallender from Puriton.
is a cheeky 4 year old, however he has an extremely rare and life
threatening heart condition," explained a spokesman.
four months, Freddy had a cardiac arrest. The Vallenders were told
that there was a 6-8% chance he would survive."
Freddy did survive thanks to amazing paramedics and CPR by a neighbour."
was diagnosed with a cardiac tumour: a Fibroma in his left ventricle.
The tumour is 5cm by 3.5cm. It makes up much of his heart wall and
fills 2/3rds of his ventricle. Cardiac tumours occur in only 0.2
percent of the population."
are completely random and is not a generic condition. Most children
present in the first year of life and unfortunately 33 % do not
tumour causes dangerous heart arrhythmias which make Freddys
heart beat in excess of 200 beats per minute and can lead to sudden
death by him going in to cardiac arrest. To date Freddy has had
3 heart surgeries and has a defibrillator implanted in his tummy,
but he needs further treatment."
is no cardiac centre in the UK that have any experience in carrying
out this surgery."
Children's Hospital in the US is the leading centre in the world.
From 1990 to date they have successfully removed 7 fibromas in children
whose life threatening rhythms have disappeared once the tumour
has been removed."
now needs to go to Boston to have lifesaving treatment to remove
Vallender's have said that having a poorly child changes you as
a person: 'You do not dare to look into the future and live in the
moment. You face that fragility of life every day'. They now need
your help to perform another miracle and get Freddy to America for