Material Needs donates dress in teenager's memory
Burnham-On-Sea craft shop has donated a hand-made dress to a charity
in memory of a local teenager who tragically died a year ago.
Needs in Burnham High Street has been displayed the hand made-dress
in its shop window during the summer for an 'Alice in Wonderland'
owners Nick Hebborn and Nicky Garland have decided to donate the
dress to a charity called SUDEP Action, supporting people with Sudden
Unexpected Death in Epilepsy, and it will be auctioned off at a
charity fundraising ball next March.
dress was collected from thre shop this week and modelled by Aimie
Russell, the sister of Cheddar 17-year-old Johdi Russell, whose
life was tragically claimed by Sudden Unexpected Death in Epilepsy
Needs' Nick Hebborn said: "Nicky made the dress and it has
attracted plenty of offers to buy it. But rather than sell it, Nicky
decided that donating it to charity would be an appropriate gesture,
especially as her son knew Johdi, who died so suddenly from a little-appreciated
form of epilepsy."
also has a son with another form of epilepsy, so research is close
to our hearts."
died from a Sudden Unexpected Death In Epilepsy (SUDEP) episode
on October 5th, 2017 at her home in Cheddar.
in 10,000 people die of SUDEP a year which often happens during
or following a seizure for no obvious reason.