Published: August 12, 2015
Burnham fundraiser to walk 50 miles of Great Wall of China for charity
A Burnham-On-Sea woman is planning to walk part of the Great Wall of China next month to raise cash for the Cystic Fibrosis Trust.
On September 10th Jenny Allen, pictured with her husband, will be flying to Beijing to take part in the six day trek along 50 miles of the Great Wall.
She told Burnham-On-Sea.com: “Our daughter Tilly Jefferies, 21, suffers with the condition and has battled many lung infections with prolonged hospital admissions. She is dependent on oxygen and has a rigorous daily physio therapy and drug treatment.”
“Our niece Leanne Woodward also had Cystic Fibrosis but sadly lost her battle and died in September 2013 aged just 22 years.”
Jenny added: “Anyone who knows me would know that I am the least energetic person you could meet, but I firmly believe any inconvenience or hardship I may have during the China challenge is nothing when compared to Tilly’s daily struggle and all those who live with Cystic Fibrosis.”
She continued: “There are improvements in the care and management of the condition but as yet no known cure. The work of the Cystic Fibrosis Trust is to bring a cure closer and to care for and support sufferers and their families is paramount.”
Cystic Fibrosis is the UK’s most common genetically inherited life shortening condition. It causes the body to produce a thick sticky mucous which clogs up the lungs and digestive system. This leads to nutrition deficiencies and serious lung infections and disease.
One in three will die before the age of 40, and for most the only hope of improving their quality of life is to have a lung transplant, but sadly as so few people opt onto the organ donor list some lose their fight before they get a call from the transplant team.